The 'Angelina Jolie' effect on breast cancer and BRCA

The 'Angelina Jolie' effect on breast cancer and BRCA

Yesterday was a crazy day as news broke that Angelina Jolie has had a double

Uncertainty

This year has started out very uncertain. It is very strange preparing for something so big and that will have such an impact on your life and yet I have no idea of when it will take place. I talked to my surgeon’s assistant before Christmas and there is still no news on my operation date. I have now been waiting well over a year since my initial referral. I was advised I will get 3 weeks notice and that even when I have a date if a more important person comes in during that period they will go ahead of me should their medical needs be greater (which I understand).

Tan Lines

In January, in a bid to beat the winter blues we went to the Bahamas to visit our friends out there. We decided to go for it because the twins hadn’t yet had their second birthday and so flights for the family were cheaper than they would have been a month later and also because this year has so much uncertainty ahead with the operation and not knowing when it will be and we didn’t know if we would get the chance to have a holiday this year and so we decided to fit it in sooner rather than later.

Preparing for surgery with Breast Reconstruction Awareness Meetings (BRA)

I am lucky enough to be at a hospital which hosts the most informative and supportive evenings for women undergoing mastectomies. On a monthly basis there is a BRA evening where women who are due to have mastectomies come together for an evening.

Sharon Osbourne and BRCA Interviews

Sharon Osbourne and BRCA Interviews

The beginning of this week has started with a bang. Sharon Osbourne has just revealed that she has had a double

Pink London

The beginning of October saw the launch of Breast Cancer Awareness Month and it was amazing to be invited to and be a part of Breast Cancer Campaign’s launch. I donned nice pretty dress and a friend and I went up to the dizzy heights of Vertigo, Tower 42 for the launch of Pink London. Breast Cancer Campaign turned 8 of London’s iconic landmarks Pink to mark the start of Breast Cancer Awareness Month.

BRCA and the Public Eye

Breast Cancer Awareness Month typically leads to a lot of ‘real-life stories’ being run in the media; both in print and on TV. This week I had the honour of meeting Michelle Heaton and two other ladies who have the BRCA2 gene. Michelle Heaton was being filmed for the TV show ‘Lorraine’ on her life with the BRCA2 gene. Like myself, she gets no personal gain out of sharing her story with the public but what she does is creates awareness of the gene, gets publicity and funding for charities and in return gets to chat with people she may otherwise have not have met. Part of the programme included Michelle talking to myself and two other ladies. We met at a tea shop and were filmed having a very informal yet informative chat about having BRCA, what it has meant to us and what we have decided to do about it.

Photo Shoots

Last week I was lucky enough to be included in a really fun Breast Cancer Campaign photo shoot. It was a really fun shoot, full of lots of very interesting and inspiring people; some of whom you will recognise some of whom you will not but everyone with their own message to convey. The talented photographer was a lovely and vibrant lady who managed to get the best out of my wooden stances. We had our hair and makeup done, we played music, we jumped around, we had refreshments and it was a great atmosphere.

The Running Bug

Since the marathon it has been hard to stay focused on any form of training. Life once again takes over and exercise unfortunately becomes a low priority. In the final months of marathon training myself and my husband became recluses. I didn’t want to drink alcohol as I knew it would adversely affect my training and similarly I didn’t really fancy going out when I had such a long run ahead of me on a Sunday.

No man's land

At around this time last year, I went to a ‘BRCA evening’ at Broomfield Hospital and one of the parts of the evening involved them highlighting their new ‘pathway’ for risk-reducing breast surgery. The idea behind this entitlement ‘pathway’ is that there is a clear process that a patient goes through and where possible clear timelines. They stated that the process from start to finish takes approximately a year and they went through the various steps: A GP referral; a consultation with the surgeons; a consultation with a psychotherapist; approval by the multi-disciplinary board; any further consultations required and then the end result the operation.

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